hey Jan! i absolutely love your blog, its so nice to know i'm not the only one on my search for an answer, like they say misery loves company. lol. i do have a bit of a personal question, do you by chance notice your symptoms changing during "your time of the month?" mine seem to trigger a few days of semi normalness, along with a round of different symptoms? also, i found that hats and umbrellas that contain spf in them are very helpful in the sun! (: -Natalie
I'm glad you have found company in me and my blog. To answer your question, yes I do have a flair-up of symptoms around my period...although it is quite irregular. I typically gain around 5 pounds of water weight - 4 of which I swear is only in my ankles - have "digestive issues", and will often get a porph patterning of my skin (not a rash). I attribute it to the flux and flow of hormones, which of course are normal but also can create porph problems. :) Hope this helps!
King George III suffered from the genetic disease porphyria, which had also tormented Mary Queen of Scots, who passed it on to her son, King James I of England.
The burn was from taking a walk in the morning when it was cloudy/drizzly out... only walking for just over an hour... but no sunscreen. Duh.
ReplyDeletehey Jan! i absolutely love your blog, its so nice to know i'm not the only one on my search for an answer, like they say misery loves company. lol. i do have a bit of a personal question, do you by chance notice your symptoms changing during "your time of the month?" mine seem to trigger a few days of semi normalness, along with a round of different symptoms? also, i found that hats and umbrellas that contain spf in them are very helpful in the sun! (:
ReplyDelete-Natalie
Hi Natalie,
ReplyDeleteI'm glad you have found company in me and my blog. To answer your question, yes I do have a flair-up of symptoms around my period...although it is quite irregular. I typically gain around 5 pounds of water weight - 4 of which I swear is only in my ankles - have "digestive issues", and will often get a porph patterning of my skin (not a rash). I attribute it to the flux and flow of hormones, which of course are normal but also can create porph problems. :)
Hope this helps!