tag:blogger.com,1999:blog-4567963285616748820.post3996745387412661342..comments2023-10-22T22:43:38.735-04:00Comments on Porphyria: A Royal Pain In My Ass: Kiss My AcneUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4567963285616748820.post-43763437798319818642014-06-18T03:06:27.636-04:002014-06-18T03:06:27.636-04:00I know this post is really old but I stumbled upon...I know this post is really old but I stumbled upon it as I was just recentlu diagnosed with AIP. While not typically a symptom of AIP, I have always been very light sensitive. Not to the point where I will blister from exposure but I will get severe sunburns from very short periods in the sun without sunscreen. Because I hate the sensation of tons of layers in the heat, I decided about 10 years ago that I was going to singlehandedly bring back the gorgeously adorned parasols of the Victorian era. Well my master plan failed to pan out on a grand scale and yes I do sometimes get some curious looks but...I wouldny give them up for anything! The parasols alloe me the freedom to wear a long flowy skirt and tank top to try and stay cool, yet still manage to keep my skin completely covered at all times. ;)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4567963285616748820.post-10010802738773321712011-08-22T12:07:40.682-04:002011-08-22T12:07:40.682-04:00Hi Natalie. Thanks for reading! Yes, she is a tr...Hi Natalie. Thanks for reading! Yes, she is a true doctor - a person with a life purpose of helping others - and I'm so glad she was accepting of me and the porphyria. I have since stocked up on cute scarves, mostly from Target!, and am wearing them when outside or driving. It's a bit hot here in the Atlanta August weather, but I'd rather be a bit warm than have damage to my skin. And it does dress up a plain T-shirt!<br /><br />I haven't heard back from Dr. Derm about the acne, I guess she is still doing research, but I'll be sure to share her recommendations.Janhttps://www.blogger.com/profile/04474623427506331660noreply@blogger.comtag:blogger.com,1999:blog-4567963285616748820.post-77198053503289582852011-08-19T20:14:22.528-04:002011-08-19T20:14:22.528-04:00yay! that's amazing! If only more doctors were...yay! that's amazing! If only more doctors were like her! I'm so happy to see that you found someone so compassionate and who's willing to try to understand! Girl, you rock that scarf & those gloves & make all those other women jealous! (: <br />Take care! <br />~NatalieAnonymousnoreply@blogger.com